Monday, March 30, 2009

Tummy Ache

Today, we had a few developments.


They did a urine flow test to see if she has any reflux into her kidneys and...negative!  She does not have any.  However, with a ureterocele, there may be a chance that her bladder doesn't empty completely.  So, they are putting her on some preventative antibiotics because this condition makes her more prone to urinary infections.  We will have a follow up with a pediatric urologist in a month or two to re-evaluate for further treatment.  That may include surgery to help the flow, but for now, the outlook is that there should be no surgery required but not 100% sure.  We are happy with that.  It's kind of like getting a 90% on a final hip exam.  I'll take it!


The neurologist hasn't spoken directly to us, but through the grapevine we have learned that the two fluid pockets in her brain are probably signs of prior trauma.  These may or may not be causing her itty bitty seizures.  They do say that there is a good chance that these episodes can go away but she may need to stay on her medication.  Further testing will tell.

Tummy Time-

For some reason, she is not passing her food through her stomach to her intestine.  It may be due to the fact that she hasn't eaten since birth and her body needs to re-adjust to the whole eating thing.  She will be supplemented by IV so she will be healthy and happy.  She has actually gained a couple ounces.  She now weighs a whopping 5lbs. 13oz!  She will be trying out for a sumo team next week.  The NICU has an intramural team with a March madness tournament.  She is my pick for the final four and eventual champion.  You can take that to Vegas!


She is chuggin along like the lil engine that could, and she will.  She has been a little sluggish probably due to her meds and the whole birth, traumatic event.  I don't blame her.  So, a few prayers for her to perk up would help. 

Thank you for all your prayers and help.


  1. I'm glad to the positive news. We are keeping our fingers crossed and your family in our prayers. Hope things get even better for you. Miss you guys tons.

  2. She's obviously a fighter! A real Princess! She's doing grand! What a beauty.

  3. That is great news-no surgery! As far as the neurologist goes, they tend to be super tight lipped. You usually have to call and pester them unfortunately. I can't really blame them, but make sure you ask LOTS of questions--ask for an official diagnosis, and the side effects of the meds, and other treatment plans/options. Many little kids just grow out of seizures--it has been 1 1/2 years since Addie's last one!! You guys are taking great care of Ava! Good job!

  4. I love reading your blog and hearing about all the progress little Ava is making! Sounds like your spirits are being held high too!! Thanks for keeping us all posted with pictures and news!